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Treating the untreatable: In the absence of cures should doctors use nutritional remedies, such as Lorenzo's Oil, despite their questionable efficacy?
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Medical ethics
Treating the untreatable: In the absence of cures should doctors use nutritional remedies, such as Lorenzo's Oil, despite their questionable efficacy?
Discuss ethical issues with the Medical Ethics department of the BMA and the Institute of Medical Ethics. Please note, the views posted here do not necessarily represent the views of the BMA or the IME
Adrenoleukodystrophy unravelled Currently, there is no treatment for the majority of X-ALD patients, particularly those with the severe cerebral form of X-ALD and adults with adrenomyeloneuropathy (A
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Forums » Open clinical » Medical ethics » Treating the untreatable: In the absence of cures should doctors use nutritional remedies, such as Lorenzo's Oil, despite their questionable efficacy?

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Forums  »  Open clinical  »  Medical ethics  »  Treating the untreatable: In the absence of cures should doctors use nutritional remedies, such as Lorenzo's Oil, despite their questionable efficacy?

Treating the untreatable: In the absence of cures should doctors use nutritional remedies, such as Lorenzo's Oil, despite their questionable efficacy?

posted at 31/7/2012 4:22 PM BST on bmj.com
Posts: 1
First: 31/7/2012
Last: 31/7/2012
Adrenoleukodystrophy unravelled

Currently, there is no treatment for the majority of X-ALD patients, particularly those with the severe cerebral form of X-ALD and adults with adrenomyeloneuropathy (AMN). With a view to developing new therapies, the Eu-funded X-ALD project aimed to shed light on the function of the ALD protein; finding evidence that suggested the underlying use of the ALD protein through its expression in genetically engineered yeast cells. The research was successful in proving that the protein was 'capable of restoring the defective transport of VLCFAS':

http://medicalxpress.com/news/2012-07-adrenoleukodystrophy-unravelled.html

Whilst this research could have significant consequences in the development of future therapies, should existing nutritional remedies, such as Lorenzo's Oil, be encouraged by doctors in the mean time, despite their questionable efficacy?

Forums » Open clinical » Medical ethics » Treating the untreatable: In the absence of cures should doctors use nutritional remedies, such as Lorenzo's Oil, despite their questionable efficacy?