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"Most paediatricians fall into two camps with regards to their own children: some of us are extra neurotic, needing full investigation for every last sniffle. But most of us fall into the second camp: “It’ll be better in the morning,” and “he just needs a bit of paracetamol.” There is no doubt that I took longer to acknowledge his symptoms than an average parent would have. I wish I had reacted quicker because he must have been in pain, hopping along for months.
We were lucky to be slotted into clinics quickly, and nothing was too much trouble in terms of arranging for us to be seen. But in retrospect, maybe had we waited for the imaging before seeing the rheumatologists, the correct diagnosis would have fallen into place without the initial confusion.
But in retrospect, maybe had we waited for the imaging before seeing the rheumatologists, the correct diagnosis would have fallen into place without the initial confusion.
What have I learnt? Firstly, everyone needs to give up control eventually. I asked a colleague to be our paediatrician so she could advocate for me when things didn’t make sense or when all the consultants involved didn’t agree"
Does having a medical parent help or hinder diagnosis and care? Would it have been better to go through the traditional channels like most patients? Did this child get the best care possible?